Happy Fathers Day D!
“Is there anything Daddy can’t do?” J my middle son asked me last week. “Sure there is buddy!” I laughed[…]
Read more“Is there anything Daddy can’t do?” J my middle son asked me last week. “Sure there is buddy!” I laughed[…]
Read moreIt started with an email. An email asking me to write a blog post for an up and coming fundraising/awareness campaign.[…]
Read moreWhat happens after? This question weighs heavily on my mind. This is not an easy piece to write nor is[…]
Read more“Can we just make sure he has a room to himself..please” I called after her as she turned on her[…]
Read moreI have been asked many times from strangers to social workers–“How do you guys deal with Ethan getting older ?”[…]
Read moreWe all have that one friend, don’t we? The one that is always going to make you laugh, purposely or[…]
Read moreMay 15th was international MPS Awareness day. It was also, the 20th anniversary of the Irish MPS Society.[…]
Read moreAs Friday the 15th of May approaches, I thought I’d write about MUCOPOLYSACCHARIDOSIS (MPS) and what it stands for in[…]
Read moreBefore Ethan’s diagnosis, there were plenty of other diagnoses…Sensory Processing Disorder was the most recent one, in the run up[…]
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