Appreciation for ‘him’
There are special daddies out there. They walk with us. They stand shoulder to shoulder with doctors and specialist asking[…]
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Category: Ethan
Raising a child with a life limiting condition; the reality of MPS- hunter syndrome.
Happy Fathers Day D!
“Is there anything Daddy can’t do?” J my middle son asked me last week. “Sure there is buddy!” I laughed[…]
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ProjectAlive.org
It started with an email. An email asking me to write a blog post for an up and coming fundraising/awareness campaign.[…]
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Being a carer in Ireland…
What happens after? This question weighs heavily on my mind. This is not an easy piece to write nor is[…]
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They do walk amoung us…
“Can we just make sure he has a room to himself..please” I called after her as she turned on her[…]
Read moreReality check
I have been asked many times from strangers to social workers–“How do you guys deal with Ethan getting older ?”[…]
Read moreSo Ethan visited the Presidents house…
May 15th was international MPS Awareness day. It was also, the 20th anniversary of the Irish MPS Society.[…]
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What does MPS stand for?!
As Friday the 15th of May approaches, I thought I’d write about MUCOPOLYSACCHARIDOSIS (MPS) and what it stands for in[…]
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Stranger ain’t ALWAYS danger…
Before Ethan’s diagnosis, there were plenty of other diagnoses…Sensory Processing Disorder was the most recent one, in the run up[…]
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That one time on Quay Street…..
As with most newly married couples,we spent plenty of time showing off my sparkly diamond tanzanite engagement ring and how[…]
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