Santa came to our house
It is Christmas. Video camera in hand, I was ready to tape our boys opening their gifts, as I do[…]
Read moreRaising a child with a life limiting condition; the reality of MPS- hunter syndrome.
It is Christmas. Video camera in hand, I was ready to tape our boys opening their gifts, as I do[…]
Read moreSo I worried needlessly all night long.Ethan is fine,happy and excited about Santa, phew. I’ll just go find something else[…]
Read more“They” say if everyone put their worries on a table, you’d take back your own ~ whom ever “they” are,[…]
Read moreFriday was one of those days~one that has your soul dancing. Ethan came home from school singing, “ho ho ho[…]
Read moreI didn’t know it when I first met him. They took him over to the corner. I tried to see[…]
Read moreEthan got his casts off on Friday. I spent the last three weeks( when he was in casts) getting his[…]
Read moreHe runs like he knows it’s a gift to be treasured, his little face all flush, breathing hard he grabs[…]
Read moreI’ve been told, that I am strong, inspirational, amazing…all those lovely words people say to you when they learn about[…]
Read moreAfter years of asking for respite for Ethan, we finally go it, shortly after baby D was born. Respite, is[…]
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